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viernes, 19 de diciembre de 2014

My self-treatment and medical supervision.

With the data collected I decided not to wait and try it before motivated by the encouraging result that had hit the animal test and my personal situation.

Treatment. Always with doctor's approval and supervision.
I mentioned the matter to my GP and my neurologist and told them I wanted to try. Given my situation both saw well that will prove as well as safe medication showed no complications.They explained their particularities and side effects and is a drug widely used. The only problem was that they could not recetármelo because valproic acid may not be approved to administer mcardle's disease can not dispense the prescription electronically, there is no such option. The only way to buy it is through internet websites that sell without a prescription . The doctor established a dose of 500 mg of valproic acid (by weight). To promote the adaptation of the organism to the drug established start with 250 mg during the first week and reduce the possibilities of side effects. The dose of 500 mg of valproic acid is a very small amount compared to the doses used for treatment of migraine or epilepsy (20mg / Kg / day). 

Regular checks. Because of the possible side effects that may occur as the involvement of liver doctors told me that I would perform monitoring every three months in addition to the periodic monitoring of blood CK (creatine kinase). 

Control of disease progression and treatment. As a patient of mcardle me perform analytical level every 3 months Ck (creatine kinase) and every 6 months the usual tests and lung response, blood oxygen, etc. 

The doctor recommended me make some measurements involving measurement of beats per minute to assess heart rate. Following the characteristics of the test I suggested measurements walk test every few meters numbers and measuring the beats per minute to the impossibility of measuring them on a bicycle stress that measures watts. Measurements of blood sugar and oxygen while important said it was not necessary that would make (you can buy the meters on Ebay for less than 30 euros). 

The beats per minute is an indicator of improvement that may involve drug. Recall that the diaphragm is a muscle which is responsible for breathing.Obtaining beats per minute to be easy to measure and get the results instantly allows a quick assessment of any improvement, especially if accompanied by a recording of measurements.

Later in six months measured as the disease progresses tests to specify and measure the levels of valproic acid in blood 

Warning: Always talk to your doctor and your neurologist before anything and inform them as I did. If symptoms of your disease mcardle are severe or more and decide medicate with valproic acid always do it the hand of your doctor and your neurologist. Inform and inform you and you perform regular monitoring of your health. If you have other conditions or are taking other medication inform your doctor because they can interact with valproic acid and can harm your health. If you are a woman do not take during pregnancy.

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